1932

Abstract

Trust is vital to public confidence in health and science, yet there is no consensus on the most useful way to conceptualize, define, measure, or intervene on trust and its related constructs (e.g., mistrust, distrust, and trustworthiness). In this review, we synthesize literature from this wide-ranging field that has conceptual roots in racism, marginalization, and other forms of oppression. We summarize key definitions and conceptual frameworks and offer guidance to scholars aiming to measure these constructs. We also review how trust-related constructs are associated with health outcomes, describe interventions in this field, and provide recommendations for building trust and institutional trustworthiness and advancing health equity. We ultimately call for future efforts to focus on improving the trustworthiness of public health professionals, scientists, health care providers, and systems instead of aiming to increase trust in these entities as they currently exist and behave.

Loading

Article metrics loading...

/content/journals/10.1146/annurev-publhealth-061022-044737
2024-05-20
2024-05-23
Loading full text...

Full text loading...

/deliver/fulltext/publhealth/45/1/annurev-publhealth-061022-044737.html?itemId=/content/journals/10.1146/annurev-publhealth-061022-044737&mimeType=html&fmt=ahah

Literature Cited

  1. 1.
    Aboueid SE, Herati H, Nascimento MHG, Ward PR, Brown PR, et al. 2023.. How do you measure trust in social institutions and health professionals? A systematic review of the literature (2012–2021). . Sociol. Compass 17:(9):e13101
    [Crossref] [Google Scholar]
  2. 2.
    Adams LB, Richmond J, Corbie-Smith G, Powell W. 2017.. Medical mistrust and colorectal cancer screening among African Americans. . J. Community Health 42::104461
    [Crossref] [Google Scholar]
  3. 3.
    Adhikari B, Yeong Cheah P, von Seidlein L. 2022.. Trust is the common denominator for COVID-19 vaccine acceptance: a literature review. . Vaccine X 12::100213
    [Crossref] [Google Scholar]
  4. 4.
    Aida J, Kondo K, Hirai H, Subramanian SV, Murata C, et al. 2011.. Assessing the association between all-cause mortality and multiple aspects of individual social capital among the older Japanese. . BMC Public Health 11::499
    [Crossref] [Google Scholar]
  5. 5.
    Alang S, McAlpine D, McClain M, Hardeman R. 2021.. Police brutality, medical mistrust and unmet need for medical care. . Prev. Med. Rep. 22::101361
    [Crossref] [Google Scholar]
  6. 6.
    Alang S, McAlpine DD, Hardeman R. 2020.. Police brutality and mistrust in medical institutions. . J. Racial Ethn. Health Disparities 7::76068
    [Crossref] [Google Scholar]
  7. 7.
    Algan Y, Cohen D, Davoine E, Foucault M, Stantcheva S. 2021.. Trust in scientists in times of pandemic: panel evidence from 12 countries. . PNAS 118::e2108576118
    [Crossref] [Google Scholar]
  8. 8.
    AlRuthia Y, Alwhaibi M, Almalag H, Almosabhi L, Almuhaya M, et al. 2020.. The relationship between trust in primary healthcare providers among patients with diabetes and levels of depression and anxiety. . PLOS ONE 15::e0239035
    [Crossref] [Google Scholar]
  9. 9.
    AlRuthia Y, Sales I, Almalag H, Alwhaibi M, Almosabhi L, et al. 2020.. The relationship between health-related quality of life and trust in primary care physicians among patients with diabetes. . Clin. Epidemiol. 12::14351
    [Crossref] [Google Scholar]
  10. 10.
    Altice FL, Mostashari F, Friedland GH. 2001.. Trust and the acceptance of and adherence to antiretroviral therapy. . J. Acquir. Immune Defic. Syndr. 28::4758
    [Crossref] [Google Scholar]
  11. 11.
    Anderson A, Griffith DM. 2022.. Measuring the trustworthiness of health care organizations and systems. . Milbank Q. 100::34564
    [Crossref] [Google Scholar]
  12. 12.
    Anderson LA, Dedrick RF. 1990.. Development of the Trust in Physician scale: a measure to assess interpersonal trust in patient-physician relationships. . Psychol. Rep. 67::1091100
    [Google Scholar]
  13. 13.
    Angelo F, Veenstra D, Knerr S, Devine B. 2022.. Prevalence and prediction of medical distrust in a diverse medical genomic research sample. . Genet. Med. 24::145967
    [Crossref] [Google Scholar]
  14. 14.
    Armstrong K, McMurphy S, Dean L, Micco E, Putt M, et al. 2008.. Differences in the patterns of health care system distrust between blacks and whites. . J. Gen. Intern. Med. 23::82733
    [Crossref] [Google Scholar]
  15. 15.
    Armstrong K, Putt M, Halbert CH, Grande D, Schwartz JS, et al. 2013.. Prior experiences of racial discrimination and racial differences in health care system distrust. . Med. Care 51::14450
    [Crossref] [Google Scholar]
  16. 16.
    Armstrong K, Rose A, Peters N, Long JA, McMurphy S, Shea JA. 2006.. Distrust of the health care system and self-reported health in the United States. . J. Gen. Intern. Med. 21::29297
    [Crossref] [Google Scholar]
  17. 17.
    Ayhan CHB, Bilgin H, Uluman OT, Sukut O, Yilmaz S, Buzlu S. 2020.. A systematic review of the discrimination against sexual and gender minority in health care settings. . Int. J. Health Serv. 50::4461
    [Crossref] [Google Scholar]
  18. 18.
    Baier A. 1986.. Trust and antitrust. . Ethics 96::23160
    [Crossref] [Google Scholar]
  19. 19.
    Balkrishnan R, Dugan E, Camacho FT, Hall MA. 2003.. Trust and satisfaction with physicians, insurers, and the medical profession. . Med. Care 41::105864
    [Crossref] [Google Scholar]
  20. 20.
    Baptiste DL, Commodore-Mensah Y, Alexander KA, Jacques K, Wilson PR, et al. 2020.. COVID-19: shedding light on racial and health inequities in the USA. . J. Clin. Nurs. 29::273436
    [Crossref] [Google Scholar]
  21. 21.
    Barefoot JC, Maynard KE, Beckham JC, Brummett BH, Hooker K, Siegler IC. 1998.. Trust, health, and longevity. . J. Behav. Med. 21::51726
    [Crossref] [Google Scholar]
  22. 22.
    Bazargan M, Cobb S, Assari S. 2021.. Discrimination and medical mistrust in a racially and ethnically diverse sample of California adults. . Ann. Fam. Med. 19::415
    [Crossref] [Google Scholar]
  23. 23.
    Benkert R, Cuevas A, Thompson HS, Dove-Meadows E, Knuckles D. 2019.. Ubiquitous yet unclear: a systematic review of medical mistrust. . Behav. Med. 45::86101
    [Crossref] [Google Scholar]
  24. 24.
    Birkhauer J, Gaab J, Kossowsky J, Hasler S, Krummenacher P, et al. 2017.. Trust in the health care professional and health outcome: a meta-analysis. . PLOS ONE 12::e0170988
    [Crossref] [Google Scholar]
  25. 25.
    Blackstock OJ, Addison DN, Brennan JS, Alao OA. 2012.. Trust in primary care providers and antiretroviral adherence in an urban HIV clinic. . J. Health Care Poor Underserved 23::8898
    [Crossref] [Google Scholar]
  26. 26.
    Borum R. 2010.. The Science of Interpersonal Trust. Ment. Health Law Polic. Fac. Publ. 574 . Tampa:: Univ. S. Fla. https://digitalcommons.usf.edu/mhlp_facpub/574
  27. 27.
    Bosworth HB, Stechuchak KM, Grambow SC, Oddone EZ. 2004.. Patient risk perceptions for carotid endarterectomy: Which patients are strongly averse to surgery?. J. Vasc. Surg. 40::8691
    [Crossref] [Google Scholar]
  28. 28.
    Braveman P, Arkin E, Orleans T, Proctor D, Plough A. 2017.. What is health equity? And what difference does a definition make? Rep. , Robert Wood Johnson Found., Princeton, NJ:. https://www.rwjf.org/en/insights/our-research/2017/05/what-is-health-equity-.html
  29. 29.
    Breckler SJ. 1984.. Empirical validation of affect, behavior, and cognition as distinct components of attitude. . J. Pers. Soc. Psychol. 47::1191205
    [Crossref] [Google Scholar]
  30. 30.
    Briggs DC, Wilson M. 2003.. An introduction to multidimensional measurement using Rasch models. . J. Appl. Meas. 4::87100
    [Google Scholar]
  31. 31.
    Bullock E, Gergel T, Kingma E. 2015.. Conference report: interdisciplinary workshop in the philosophy of medicine: parentalism and trust. . J. Eval. Clin. Pract. 21::54248
    [Crossref] [Google Scholar]
  32. 32.
    Burge DM. 2009.. Relationship between patient trust of nursing staff, postoperative pain, and discharge functional outcomes following a total knee arthroplasty. . Orthop. Nurs. 28::295301
    [Crossref] [Google Scholar]
  33. 33.
    CCA (Counc. Can. Acad.). 2023.. Fault lines: expert panel on the socioeconomic impacts of science and health misinformation. Rep. , CCA, Ottawa:. https://cca-reports.ca/reports/the-socioeconomic-impacts-of-health-and-science-misinformation/
  34. 34.
    Cha E-S, Kim KH, Erlen JA. 2007.. Translation of scales in cross-cultural research: issues and techniques. . J. Adv. Nurs. 58::38695
    [Crossref] [Google Scholar]
  35. 35.
    Chinekezi O, Andress L, Agonafer EP, Massick S, Piepenbrink S, et al. 2023.. From the national to the local: issues of trust and a model for community-academic-engagement. . Front. Public Health 11::1068425
    [Crossref] [Google Scholar]
  36. 36.
    Clancy DE, Cope DW, Magruder KM, Huang P, Salter KH, Fields AW. 2003.. Evaluating group visits in an uninsured or inadequately insured patient population with uncontrolled type 2 diabetes. . Diabetes Educ. 29::292302
    [Crossref] [Google Scholar]
  37. 37.
    Clancy DE, Yeager DE, Huang P, Magruder KM. 2007.. Further evaluating the acceptability of group visits in an uninsured or inadequately insured patient population with uncontrolled type 2 diabetes. . Diabetes Educ. 33::30914
    [Crossref] [Google Scholar]
  38. 38.
    Colasanti JA, Del Rio C, Cheng DM, Liebschutz JM, Lira MC, et al. 2022.. A collaborative care intervention to improve opioid prescribing among providers caring for persons with HIV: impact on satisfaction, confidence, and trust. . Drug Alcohol Depend. 231::109250
    [Crossref] [Google Scholar]
  39. 39.
    Cunningham-Erves J, Mayo-Gamble T, Vaughn Y, Hawk J, Helms M, et al. 2020.. Engagement of community stakeholders to develop a framework to guide research dissemination to communities. . Health Expect. 23::95868
    [Crossref] [Google Scholar]
  40. 40.
    Cunningham-Erves J, Mayo-Gamble TL, Hull PC, Lu T, Barajas C, et al. 2021.. A pilot study of a culturally-appropriate, educational intervention to increase participation in cancer clinical trials among African Americans and Latinos. . Cancer Causes Control 32::95363
    [Crossref] [Google Scholar]
  41. 41.
    Cunningham-Erves J, Stewart EC, Duke J, Alexander L, Davis J, et al. 2022.. Use of community listening sessions to disseminate research findings to past participants and communities. . J. Community Health 47::20110
    [Crossref] [Google Scholar]
  42. 42.
    DeVellis RF. 2016.. Scale Development: Theory and Applications. Thousand Oaks, CA:: Sage
  43. 43.
    Dong X, Bergren S, Simon MA. 2017.. Cross-sectional and longitudinal association between trust in physician and depressive symptoms among U.S. community-dwelling Chinese older adults. . J. Gerontol. A Biol. Sci. Med. Sci. 72::S12530
    [Crossref] [Google Scholar]
  44. 44.
    Ejlskov L, Mortensen RN, Overgaard C, Christensen LRBU, Vardinghus-Nielsen H, et al. 2014.. Individual social capital and survival: a population study with 5-year follow-up. . BMC Public Health 14::1025
    [Crossref] [Google Scholar]
  45. 45.
    Elder K, Ramamonjiarivelo Z, Wiltshire J, Piper C, Horn WS, et al. 2012.. Trust, medication adherence, and hypertension control in Southern African American men. . Am. J. Public Health 102::224245
    [Crossref] [Google Scholar]
  46. 46.
    Elwy AR, Maguire EM, Gallagher TH, Asch SM, Durfee JM, et al. 2021.. Risk communication after health care exposures: an experimental vignette survey with patients. . MDM Policy Pract. 6::23814683211045659
    [Google Scholar]
  47. 47.
    Feagin J, Bennefield Z. 2014.. Systemic racism and U.S. health care. . Soc. Sci. Med. 103::714
    [Crossref] [Google Scholar]
  48. 48.
    Frei FX, Morriss A. 2020.. Begin with trust: the first step to becoming a genuinely empowering leader. . Harvard Bus. Rev., May–June. https://hbr.org/2020/05/begin-with-trust
    [Google Scholar]
  49. 49.
    Fujimori M, Shirai Y, Asai M, Kubota K, Katsumata N, Uchitomi Y. 2014.. Effect of communication skills training program for oncologists based on patient preferences for communication when receiving bad news: a randomized controlled trial. . J. Clin. Oncol. 32::216672
    [Crossref] [Google Scholar]
  50. 50.
    Garcia-Gonzalez A, Gonzalez-Lopez L, Gamez-Nava JI, Rodríguez-Arreola BE, Cox V, Suarez-Almazor ME. 2009.. Doctor-patient interactions in Mexican patients with rheumatic disease. . J. Clin. Rheumatol. 15::12023
    [Crossref] [Google Scholar]
  51. 51.
    Giordano GN, Mewes J, Miething A. 2019.. Trust and all-cause mortality: a multilevel study of US General Social Survey data (1978–2010). . J. Epidemiol. Community Health 73::5055
    [Crossref] [Google Scholar]
  52. 52.
    Goold SD. 2002.. Trust, distrust and trustworthiness. . J. Gen. Intern. Med. 17::7981
    [Crossref] [Google Scholar]
  53. 53.
    Graham JL, Shahani L, Grimes RM, Hartman C, Giordano TP. 2015.. The influence of trust in physicians and trust in the healthcare system on linkage, retention, and adherence to HIV care. . AIDS Patient Care STDS 29::66167
    [Crossref] [Google Scholar]
  54. 54.
    Greene J, Ramos C. 2021.. A mixed methods examination of health care provider behaviors that build patients’ trust. . Patient Educ. Counsel. 104::122228
    [Crossref] [Google Scholar]
  55. 55.
    Griffith DM, Bergner EM, Fair AS, Wilkins CH. 2021.. Using mistrust, distrust, and low trust precisely in medical care and medical research advances health equity. . Am. J. Prev. Med. 60::44245
    [Crossref] [Google Scholar]
  56. 56.
    Halbert CH, Armstrong K, Gandy OH Jr., Shaker L. 2006.. Racial differences in trust in health care providers. . Arch. Intern. Med. 166::896901
    [Crossref] [Google Scholar]
  57. 57.
    Hall MA, Camacho F, Dugan E, Balkrishnan R. 2002.. Trust in the medical profession: conceptual and measurement issues. . Health Serv. Res. 37::141939
    [Crossref] [Google Scholar]
  58. 58.
    Hall MA, Dugan E, Balkrishnan R, Bradley D. 2002.. How disclosing HMO physician incentives affects trust. . Health Aff. 21::197206
    [Crossref] [Google Scholar]
  59. 59.
    Hall MA, Dugan E, Zheng B, Mishra AK. 2001.. Trust in physicians and medical institutions: What is it, can it be measured, and does it matter?. Milbank Q. 79::61339, v
    [Crossref] [Google Scholar]
  60. 60.
    Hammond WP, Matthews D, Mohottige D, Agyemang A, Corbie-Smith G. 2010.. Masculinity, medical mistrust, and preventive health services delays among community-dwelling African-American men. . J. Gen. Intern. Med. 25::13008
    [Crossref] [Google Scholar]
  61. 61.
    Harrington N, Chen Y, O'Reilly AM, Fang CY. 2021.. The role of trust in HPV vaccine uptake among racial and ethnic minorities in the United States: a narrative review. . AIMS Public Health 8::35268
    [Crossref] [Google Scholar]
  62. 62.
    Hillen MA, de Haes HCJM, Smets EMA. 2011.. Cancer patients’ trust in their physician—a review. . Psychooncology 20::22741
    [Crossref] [Google Scholar]
  63. 63.
    Hsu J, Schmittdiel J, Krupat E, Stein T, Thom D, et al. 2003.. Patient choice. A randomized controlled trial of provider selection. . J. Gen. Intern. Med. 18::31925
    [Crossref] [Google Scholar]
  64. 64.
    Hunfeld JAM, Leurs A, De Jong M, Oberstein ML, Tibben A, et al. 1999.. Prenatal consultation after a fetal anomaly scan: videotaped exploration of physician's attitude and patient's satisfaction. . Prenat. Diagn. 19::104347
    [Crossref] [Google Scholar]
  65. 65.
    Jaiswal J, Halkitis PN. 2019.. Towards a more inclusive and dynamic understanding of medical mistrust informed by science. . Behav. Med. 45::7985
    [Crossref] [Google Scholar]
  66. 66.
    Kcomt L. 2019.. Profound health-care discrimination experienced by transgender people: rapid systematic review. . Soc. Work Health Care 58::20119
    [Crossref] [Google Scholar]
  67. 67.
    Kirzinger A, Presiado M, Valdes I, Hamel L, Brodie M. 2023.. The COVID-19 pandemic: insights from three years of KFF polling. . KFF, Mar. 7. https://www.kff.org/coronavirus-covid-19/poll-finding/the-covid-19-pandemic-insights-from-three-years-of-kff-polling/
  68. 68.
    Kravitz RL, Schmid CH, Marois M, Wilsey B, Ward D, et al. 2018.. Effect of mobile device-supported single-patient multi-crossover trials on treatment of chronic musculoskeletal pain: a randomized clinical trial. . JAMA Intern. Med. 178::136877
    [Crossref] [Google Scholar]
  69. 69.
    Ladin K, Porteny T, Perugini JM, Gonzales KM, Aufort KE, et al. 2021.. Perceptions of telehealth versus in-person visits among older adults with advanced kidney disease, care partners, and clinicians. . JAMA Netw. Open 4::e2137193
    [Crossref] [Google Scholar]
  70. 70.
    LaVeist TA, Isaac LA, Williams KP. 2009.. Mistrust of health care organizations is associated with underutilization of health services. . Health Serv. Res. 44::2093105
    [Crossref] [Google Scholar]
  71. 71.
    LeBlanc D, Power AH, DeRose G, Duncan A, Dubois L. 2018.. Patient satisfaction with the consent discussion is not improved by showing patients their computed tomography or angiography images before they undergo vascular surgery. . J. Vasc. Surg. 68::151723.e3
    [Crossref] [Google Scholar]
  72. 72.
    Lee TH, McGlynn EA, Safran DG. 2019.. A framework for increasing trust between patients and the organizations that care for them. . JAMA 321::53940
    [Crossref] [Google Scholar]
  73. 73.
    Lee Y-Y, Lin JL. 2009.. The effects of trust in physician on self-efficacy, adherence and diabetes outcomes. . Soc. Sci. Med. 68::106068
    [Crossref] [Google Scholar]
  74. 74.
    Lee Y-Y, Lin JL. 2011.. How much does trust really matter? A study of the longitudinal effects of trust and decision-making preferences on diabetic patient outcomes. . Patient Educ. Couns. 85::40612
    [Crossref] [Google Scholar]
  75. 75.
    Lemmers AL, van der Voort PHJ. 2021.. Trust in intensive care patients, family, and healthcare professionals: the development of a conceptual framework followed by a case study. . Healthcare 9::208
    [Crossref] [Google Scholar]
  76. 76.
    Lincoln TE, Buddadhumaruk P, Arnold RM, Scheunemann LP, Ernecoff NC, et al. 2022.. Association between shared decision-making during family meetings and surrogates' trust in their ICU physician. . Chest 163::121424
    [Crossref] [Google Scholar]
  77. 77.
    LoCurto J, Berg GM. 2016.. Trust in healthcare settings: scale development, methods, and preliminary determinants. . SAGE Open. Med. 4::2050312116664224
    [Crossref] [Google Scholar]
  78. 78.
    Mainous AG 3rd, Kern D, Hainer B, Kneuper-Hall R, Stephens J, Geesey ME. 2004.. The relationship between continuity of care and trust with stage of cancer at diagnosis. . Fam. Med. 36::3539
    [Google Scholar]
  79. 79.
    Mancuso JM. 2010.. Impact of health literacy and patient trust on glycemic control in an urban USA population. . Nurs. Health Sci. 12::94104
    [Crossref] [Google Scholar]
  80. 80.
    McDaniel CE, Arthur KC, Arakelyan M, Stevens C, Montalbano A, et al. 2022.. Understanding trust between pediatric hospitalists and outpatient clinicians during hospital admissions: a multisite qualitative analysis. . J. Hosp. Med. 17::26875
    [Crossref] [Google Scholar]
  81. 81.
    McKinstry B, Ashcroft RE, Car J, Freeman GK, Sheikh A. 2006.. Interventions for improving patients' trust in doctors and groups of doctors. . Cochrane Database Syst. Rev. 2006:(3):CD004134
    [Google Scholar]
  82. 82.
    Menon U, Szalacha L, Prabhughate A, Kue J. 2014.. Correlates of colorectal cancer screening among South Asian immigrants in the United States. . Cancer Nurs. 37::E1927
    [Crossref] [Google Scholar]
  83. 83.
    Merenstein Z, Shuemaker JC, Phillips RL. 2023.. Measuring trust in primary care. . Milbank Q. 101:(3):84180
    [Crossref] [Google Scholar]
  84. 84.
    Müller E, Zill JM, Dirmaier J, Härter M, Scholl I. 2014.. Assessment of trust in physician: a systematic review of measures. . PLOS ONE 9::e106844
    [Crossref] [Google Scholar]
  85. 85.
    Musa D, Schulz R, Harris R, Silverman M, Thomas SB. 2009.. Trust in the health care system and the use of preventive health services by older black and white adults. . Am. J. Public Health 99::129399
    [Crossref] [Google Scholar]
  86. 86.
    Nannenga MR, Montori VM, Weymiller AJ, Smith SA, Christianson TJ, et al. 2009.. A treatment decision aid may increase patient trust in the diabetes specialist. The Statin Choice randomized trial. . Health Expect. 12::3844
    [Crossref] [Google Scholar]
  87. 87.
    Nelson KE, Hanson GC, Boyce D, Ley CD, Swavely D, et al. 2022.. Organizational impact on healthcare workers' moral injury during COVID-19: a mixed-methods analysis. . J. Nurs. Adm. 52::5766
    [Crossref] [Google Scholar]
  88. 88.
    Nong P, Raj M, Creary M, Kardia SLR, Platt JE. 2020.. Patient-reported experiences of discrimination in the US health care system. . JAMA Netw. Open 3::e2029650
    [Crossref] [Google Scholar]
  89. 89.
    O'Malley PG, Jackson JL, Becher D, Hanson J, Lee JK, Grace KA. 2022.. Tool to improve patient-provider interactions in adult primary care: randomized controlled pilot study. . Can. Fam. Phys. 68::e4958
    [Crossref] [Google Scholar]
  90. 90.
    Orrange S, Patel A, Mack WJ, Cassetta J. 2021.. Patient satisfaction and trust in telemedicine during the COVID-19 pandemic: retrospective observational study. . JMIR Hum. Factors 8::e28589
    [Crossref] [Google Scholar]
  91. 91.
    Ozawa S, Sripad P. 2013.. How do you measure trust in the health system? A systematic review of the literature. . Soc. Sci. Med. 91::1014
    [Crossref] [Google Scholar]
  92. 92.
    Ozawa S, Stack ML. 2013.. Public trust and vaccine acceptance—international perspectives. . Hum. Vaccin. Immunother. 9::177478
    [Crossref] [Google Scholar]
  93. 93.
    Pearson SD, Kleinman K, Rusinak D, Levinson W. 2006.. A trial of disclosing physicians' financial incentives to patients. . Arch. Intern. Med. 166::62328
    [Crossref] [Google Scholar]
  94. 94.
    Pellowski JA, Price DM, Allen AM, Eaton LA, Kalichman SC. 2017.. The differences between medical trust and mistrust and their respective influences on medication beliefs and ART adherence among African-Americans living with HIV. . Psychol. Health 32::112739
    [Crossref] [Google Scholar]
  95. 95.
    Pieterse AH, Brandes K, de Graaf J, de Boer JE, Labrie NHM, et al. 2022.. Fostering patient choice awareness and presenting treatment options neutrally: a randomized trial to assess the effect on perceived room for involvement in decision making. . Med. Decis. Mak. 42::37586
    [Crossref] [Google Scholar]
  96. 96.
    Pollard MS, Davis LM. 2022.. Decline in trust in the Centers for Disease Control and Prevention during the COVID-19 pandemic. . RAND Health Q. 9::23
    [Google Scholar]
  97. 97.
    Powell W, Richmond J, Mohottige D, Yen I, Joslyn A, Corbie-Smith G. 2019.. Medical mistrust, racism, and delays in preventive health screening among African-American men. . Behav. Med. 45::10217
    [Crossref] [Google Scholar]
  98. 98.
    Pullyblank K. 2023.. A scoping literature review of rural beliefs and attitudes toward telehealth utilization. . West. J. Nurs. Res. 45::37584
    [Crossref] [Google Scholar]
  99. 99.
    Putnick DL, Bornstein MH. 2016.. Measurement invariance conventions and reporting: the state of the art and future directions for psychological research. . Dev. Rev. 41::7190
    [Crossref] [Google Scholar]
  100. 100.
    Rainie L, Perrin A. 2019.. Key findings about Americans’ declining trust in government and each other. . Pew Res. Cent., July 22. https://www.pewresearch.org/short-reads/2019/07/22/key-findings-about-americans-declining-trust-in-government-and-each-other/
    [Google Scholar]
  101. 101.
    Ratanawongsa N, Karter AJ, Parker MM, Lyles CR, Heisler M, et al. 2013.. Communication and medication refill adherence: the Diabetes Study of Northern California. . JAMA Intern. Med. 173::21018
    [Crossref] [Google Scholar]
  102. 102.
    Reina DS, Reina ML. 2006.. Trust and Betrayal in the Workplace: Building Effective Relationships in Your Organization. San Francisco:: Berrett-Koehler
  103. 103.
    Reina DS, Reina ML. 2007.. Building sustainable trust. . OD Pract. 39::3641
    [Google Scholar]
  104. 104.
    Richmond J, Boynton MH, Ozawa S, Muessig KE, Cykert S, Ribisl KM. 2022.. Development and validation of the Trust in My Doctor, Trust in Doctors in General, and Trust in the Health Care Team scales. . Soc. Sci. Med. 298::114827
    [Crossref] [Google Scholar]
  105. 105.
    Ristolainen H, Kannasoja S, Tiilikainen E, Hakala M, Narhi K, Rissanen S. 2020.. Effects of ‘participatory group-based care management’ on wellbeing of older people living alone: a randomized controlled trial. . Arch. Gerontol. Geriatr. 89::104095
    [Crossref] [Google Scholar]
  106. 106.
    Rolfe A, Cash-Gibson L, Car J, Sheikh A, McKinstry B. 2014.. Interventions for improving patients' trust in doctors and groups of doctors. . Cochrane Database Syst. Rev. 2014:(3):CD004134
    [Google Scholar]
  107. 107.
    Rose A, Peters N, Shea JA, Armstrong K. 2004.. Development and testing of the Health Care System Distrust Scale. . J. Gen. Intern. Med. 19::5763
    [Crossref] [Google Scholar]
  108. 108.
    Rovner BW, Casten RJ, Chang AM, Hollander JE, Rising K. 2021.. Mistrust, neighborhood deprivation, and telehealth use in African Americans with diabetes. . Popul. Health Manag. 24::699700
    [Crossref] [Google Scholar]
  109. 109.
    Shea JA, Micco E, Dean LT, McMurphy S, Schwartz JS, Armstrong K. 2008.. Development of a revised Health Care System Distrust scale. . J. Gen. Intern. Med. 23::72732
    [Crossref] [Google Scholar]
  110. 110.
    Silver D, Kim Y, McNeill E, Piltch-Loeb R, Wang V, Abramson D. 2022.. Association between COVID-19 vaccine hesitancy and trust in the medical profession and public health officials. . Prev. Med. 164::107311
    [Crossref] [Google Scholar]
  111. 111.
    Sivashanker K, Couillard C, Goldsmith J, Walker N, Eappen S. 2020.. Addressing the caste system in U.S. healthcare in the era of COVID-19. . Int. J. Equity Health 19::184
    [Crossref] [Google Scholar]
  112. 112.
    Skains RM, Kuppermann N, Homme JL, Kharbanda AB, Tzimenatos L, et al. 2020.. What is the effect of a decision aid in potentially vulnerable parents? Insights from the head CT choice randomized trial. . Health Expect. 23::6374
    [Crossref] [Google Scholar]
  113. 113.
    Spencer R, Nilsson M, Wright A, Pirl W, Prigerson H. 2010.. Anxiety disorders in advanced cancer patients: correlates and predictors of end of life outcomes. . Cancer 116::181019
    [Crossref] [Google Scholar]
  114. 114.
    Stallings SC, Cunningham-Erves J, Frazier C, Ichimura JS, Hurd TC, et al. 2022.. Development and validation of the Perceptions of Research Trustworthiness scale to measure trust among minoritized racial and ethnic groups in biomedical research in the US. . JAMA Netw. Open 5::e2248812
    [Crossref] [Google Scholar]
  115. 115.
    Suhay E, Soni A, Persico C, Marcotte DE. 2022.. Americans’ trust in government and health behaviors during the COVID-19 pandemic. . RSF 8::22144
    [Crossref] [Google Scholar]
  116. 116.
    Takaesu Y, Aoki Y, Tomo Y, Tsuboi T, Ishii M, et al. 2022.. Implementation of a shared decision-making training program for clinicians based on the major depressive disorder guidelines in Japan: a multi-center cluster randomized trial. . Front. Psychiatry 13::967750
    [Crossref] [Google Scholar]
  117. 117.
    Taylor LA, Nong P, Platt J. 2023.. Fifty years of trust research in health care: a synthetic review. . Milbank Q. 101::12678
    [Crossref] [Google Scholar]
  118. 118.
    Thom DH, Hessler D, Willard-Grace R, Bodenheimer T, Najmabadi A, et al. 2014.. Does health coaching change patients' trust in their primary care provider?. Patient Educ. Couns. 96::13538
    [Crossref] [Google Scholar]
  119. 119.
    Thom DH, Ribisl KM, Stewart AL, Luke DA, Stanford Trust Study Phys. 1999.. Further validation and reliability testing of the Trust in Physician Scale. . Med. Care 37::51017
    [Crossref] [Google Scholar]
  120. 120.
    Thom DH, Tirado MD, Woon TL, McBride MR. 2006.. Development and evaluation of a cultural competency training curriculum. . BMC Med. Educ. 6::38
    [Crossref] [Google Scholar]
  121. 121.
    Thom DH, Wong ST, Guzman D, Wu A, Penko J, et al. 2011.. Physician trust in the patient: development and validation of a new measure. . Ann. Fam. Med. 9::14854
    [Crossref] [Google Scholar]
  122. 122.
    Thompson HS, Manning M, Mitchell J, Kim S, Harper FWK, et al. 2021.. Factors associated with racial/ethnic group–based medical mistrust and perspectives on COVID-19 vaccine trial participation and vaccine uptake in the US. . JAMA Netw. Open 4::e2111629
    [Crossref] [Google Scholar]
  123. 123.
    Thompson HS, Valdimarsdottir HB, Winkel G, Jandorf L, Redd W. 2004.. The Group-Based Medical Mistrust Scale: psychometric properties and association with breast cancer screening. . Prev. Med. 38::20918
    [Crossref] [Google Scholar]
  124. 124.
    Thompson M, Gee S, Larson P, Kotz K, Northrop L. 2001.. Health and loyalty promotion visits for new enrollees: results of a randomized controlled trial. . Patient Educ. Couns. 42::5365
    [Crossref] [Google Scholar]
  125. 125.
    Tucker CM, Marsiske M, Rice KG, Nielson JJ, Herman K. 2011.. Patient-centered culturally sensitive health care: model testing and refinement. . Health Psychol. 30::34250
    [Crossref] [Google Scholar]
  126. 126.
    Tulsky JA, Arnold RM, Alexander SC, Olsen MK, Jeffreys AS, et al. 2011.. Enhancing communication between oncologists and patients with a computer-based training program: a randomized trial. . Ann. Intern. Med. 155::593601
    [Crossref] [Google Scholar]
  127. 127.
    Vina ER, Masi CM, Green SL, Utset TO. 2012.. A study of racial/ethnic differences in treatment preferences among lupus patients. . Rheumatology 51::1697706
    [Crossref] [Google Scholar]
  128. 128.
    Wang Y, Liu Y. 2021.. Multilevel determinants of COVID-19 vaccination hesitancy in the United States: a rapid systematic review. . Prev. Med. Rep. 25::101673
    [Crossref] [Google Scholar]
  129. 129.
    Wilk AS, Platt JE. 2016.. Measuring physicians’ trust: a scoping review with implications for public policy. . Soc. Sci. Med. 165::7581
    [Crossref] [Google Scholar]
  130. 130.
    Wilkins CH. 2018.. Effective engagement requires trust and being trustworthy. . Med. Care 56:(10 Suppl. 1):S68
    [Crossref] [Google Scholar]
  131. 131.
    Williamson LD, Bigman CA. 2018.. A systematic review of medical mistrust measures. . Patient Educ. Couns. 101::178694
    [Crossref] [Google Scholar]
  132. 132.
    Wolfson D. 2021.. Addressing distrust by embracing the four dimensions of trust. . ABIM Found. Blog, June 9. https://abimfoundation.org/blog-post/addressing-distrust-by-embracing-the-four-dimensions-of-trust
    [Google Scholar]
  133. 133.
    Wu T-Y, Ford O, Rainville AJ, Yang X, Chow CM, et al. 2022.. Perceptions of COVID-19 vaccine, racism, and social vulnerability: an examination among East Asian Americans, Southeast Asian Americans, South Asian Americans, and others. . Vaccines 10::1333
    [Crossref] [Google Scholar]
  134. 134.
    Wyatt R, Tucker L, Mate K, Cerise F, Fernandez A, et al. 2023.. A matter of trust: commitment to act for health equity. . Healthcare 11::100675
    [Crossref] [Google Scholar]
  135. 135.
    Yasmin F, Najeeb H, Moeed A, Naeem U, Asghar MS, et al. 2021.. COVID-19 vaccine hesitancy in the United States: a systematic review. . Front. Public Health 9::770985
    [Crossref] [Google Scholar]
  136. 136.
    Yearby R, Clark B, Figueroa JF. 2022.. Structural racism in historical and modern US health care policy. . Health Aff. 41::18794
    [Crossref] [Google Scholar]
  137. 137.
    Zink A, Taylor LA, Nong P, Platt J, Yarkony A. 2022.. The overlooked role of physician trust in patients. . Health Aff. Forefront, Nov. 28. https://doi.org/10.1377/forefront.20221123.351289
    [Google Scholar]
/content/journals/10.1146/annurev-publhealth-061022-044737
Loading
/content/journals/10.1146/annurev-publhealth-061022-044737
Loading

Data & Media loading...

  • Article Type: Review Article
This is a required field
Please enter a valid email address
Approval was a Success
Invalid data
An Error Occurred
Approval was partially successful, following selected items could not be processed due to error